tag:blogger.com,1999:blog-1853029641407266021.post8854114459563638751..comments2023-03-27T07:27:49.270-07:00Comments on Ellie Belly: Fearful Mommy: part 1Nicholehttp://www.blogger.com/profile/17866734524400698417noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-1853029641407266021.post-56756433254281302792011-02-09T08:17:19.965-08:002011-02-09T08:17:19.965-08:00Kristina I sent you an email!Kristina I sent you an email!Nicholehttps://www.blogger.com/profile/17866734524400698417noreply@blogger.comtag:blogger.com,1999:blog-1853029641407266021.post-21814955372907457752011-02-08T09:13:56.934-08:002011-02-08T09:13:56.934-08:00Nichole
My son has been sick his entire life--for ...Nichole<br />My son has been sick his entire life--for months I have fought for answers and to try to help him get well. All this time we have always thought he had a birth defect causing his swallowing, choking and aspiraton issues. Only just last week did a NEW GI doctor tell us he suspected Fpies. I have been using this formula ever since he was over one year and I used mostly hypoallergetic ingredients--because I had always suspected milk/soy intolerance--I added omega oils, apple cider vinegar, and milk free probiotics because of research I found that they help the gut and reduce inflammation. My son has lived on this formula ALONE because he could not eat solids for months because he could not swallow without choking. It was originally a G-tube feed but he loves to drink it by mouth now. So to answer your question--I am JUST NOW trialing foods as well as new liquids--I had NEVER heard of FPIES. I do need advise from you experienced Mom's about the food tials and elimination diet--no one here can really give me any help. I'd love to talk to you more--I really need some guidence. My email is Kristina.mommyofofour@gmail.com<br />Thank you sooo much!Kristinahttps://www.blogger.com/profile/17067446970706507141noreply@blogger.comtag:blogger.com,1999:blog-1853029641407266021.post-19891813272560748502011-02-07T12:50:30.103-08:002011-02-07T12:50:30.103-08:00Nichole what wise words! I too have been working ...Nichole what wise words! I too have been working on the expecting to receive it part.<br /><br />Kristina....wow! So happy you found a solution and your nutritionist has been so amazing. I will check your blog immediately! Did you have to trial the ingredients initially? Did you build the formula or did you just introduce it all at once?Nicholehttps://www.blogger.com/profile/17866734524400698417noreply@blogger.comtag:blogger.com,1999:blog-1853029641407266021.post-54964008649160132502011-02-07T10:00:57.912-08:002011-02-07T10:00:57.912-08:00Nichole
I completely understand your fears. My so...Nichole<br />I completely understand your fears. My son has been severely under weight for most of his young life (he is only 20 months and finally weighs 20lbs). My son could not tolerate the neocate, I believe also due to corn. We have had GREAT sucess with a home made real food formula. It was given to me by a nutritionist in the hospital. If you like, check out my blog I believe under G-tube, I will try to see if I can make the post more obvious, or if you have a way, I could email it to you. I posted it, because it has saved my son's life and I use it every day to add calories to the little solids that he eats. It is 30/cal per oz give or take depending on what milk subsitute used. You can use the almond milk for the base, and leave out any ingredients that your son cannot tolerate yet. I hope that others can benifit from the formula and added nutrition and calories. the blog is imexpectingtheunexpected.blogspot.com<br />Of course, check with your doctor if you have any concerns, but as I said this was given to me by a certified nutritionist at Children's Hospital.Kristinahttps://www.blogger.com/profile/17067446970706507141noreply@blogger.comtag:blogger.com,1999:blog-1853029641407266021.post-91213392155476529852011-02-07T05:37:49.213-08:002011-02-07T05:37:49.213-08:00Nichole, I have spent much time in prayer - asking...Nichole, I have spent much time in prayer - asking always for wisdom. I was agonizing about what to do next...what to offer next and when to start. I had been praying on James 1:5-8 (God gives it without reproach but we must expect to recieve it). I have been waiting and waiting for God to show me what to do - to give me the wisdom I was asking for. Then the other day I "heard" him telling me that sometimes the wisdom he gives is for me to make a decision WITH discernment. He will bless that. FEAR NOT : )Nichole G.https://www.blogger.com/profile/17651879708798278799noreply@blogger.com