The search for an explanation of digestive enzymes and why they might be missing revealed a list of additional 'disorders' and 'diagnoses' that are labeled as genetic, but with no gene yet found. All of the enzymes can be missing in various capacities, and it is very often a secondary condition to intestinal dysbiosis. Let me say that again - a secondary condition due to intestinal damage and NOT a genetic disorder. Our G.I. brought this to our attention early on. This is what I believe Ellie has, Sugar Intolerance as a secondary condition to FPIES.
Congential Sucrase-Isomaltase Deficiency (CSID) is one dissacharide deficiency diagnosis with it's own parent group website. On this website I found a very helpful list telling sucrose and starch levels in various foods. One quick glance through shed light onto the progression of foods allowed on the GAPS and SCD nutritional programs. The introduction diet (or healing stage) of GAPS allows for only broccoli, cauliflower, carrots, onions, leeks, and squash (winter and summer). All of these vegetables have extremely low levels of any sugars that would need enzymes for digestion. Winter squash and carrots are the highest in starch, and most surprisingly, broccoli and cauliflower have almost zero levels of fructose, sucrose, maltose, lactose or starch. Those green vegetables that the doctors have said for Ellie to avoid due to high levels of protein? Low low LOW on the scale of digestion needs. Good good GOOD choice for us! And right in line with Dr. Natasha. More confirmation we are headed in the right direction.
So the answer, once again, was right in front of me. What do we feed her to continue her healing? GAPS, stage 1. For those of you curious here is a fantastic resource I found by another blogger. She compiled a condensed view of the healing stages of GAPS. Her super cute site has a super great name, too: Health, Home and Happiness. A very important three!