Thursday, September 8, 2011

More Proof

Of COURSE, immediately after I resort to anxiety and wondering how Ellie will progress, she spends the evening asking for bites of my lentil soup, and spends today carrying around and nibbling (licking) a blueberry (almond flour) scone!

WAIT. Before you panic, let me tell you the GOOD news.

Yes, I did what every FPIES mom should NOT do - let her just go for it. BUT - We have already moved all food in the house over to full GAPS (grain free, soy free, corn free, starch free), so I had the reassurance of knowing this while she was carrying food around. Also, the 'bites' of soup were so microscopic that the total ingested was probably 1/32 of a teaspoon.

It was only months ago that Ellie could lick a spoon or have a sticker placed on her skin, and we would have anything from a classic to atypical FPIES reaction. Vomiting, diarrhea, shock like symptoms, etc. from such a small amount. It was terrifying.

This time I knew we had almost 6 months of healing on the calendar. This time I knew that her asking for food was pivotal in making progress. I took a risk.

And this time - NO FPIES RESPONSE!

OK so we had some loose stool the next day which said 'mama what were you thinking', and her eczema is flared, but no vomiting, no extreme diarrhea, no shock like symptoms.

THIS is amazing confirmation that she is truly progressing.

Baby steps.

This does not mean we can begin feeding her, or even that lentils are safe. To start feeding her these things would be silly and just cause damage to her still healing gut. But it is hope. Healing. Exciting! Encouraging that she is ready to begin adding in more foods.

Hooray!

No comments:

Post a Comment