Wednesday, February 16, 2011

Day >>10<< of *REAL* Food!

Today was day 10 of real food for Ellie. Since I have spent every waking moment on the internet, on the phone, driving to various stores and markets, and in the kitchen cooking, it has gone by extremely fast. This is a good thing because if I had any more time to think about it I would have vomited from anxiety.

Ellie has been doing fantastic on home made, grass fed, corn free and soy free bone broths. There is an amazing healing factor to consuming bone based soups. If you don't believe me, just Google it. The resources are amazing. Bone broths have been used for centuries because of their amazing healing nutrients.

Yesterday we added in pureed lamb and she had a field day. Today I added in pureed salmon, and she began a hunger strike. I only let her go about 4 hours protesting because instructions I (personally via email!!) received from Dr. Natasha Campbell-McBride, doctor of neurology and nutrition, said to feed her bone broth with pureed meats and marrow every hour. Back she went onto lamb for the rest of the day, and she did great. She still is battling a virus which is continually reminding me to be nervous. Occasional fussing, extra napping, stirring and waking in her sleep, all stop me in my tracks and cause me to ask myself 'reaction!??..or just virus???' I think some things will just never change.

This is the farthest thing any doctor here in the U.S. would recommend that you feed to an FPIES child. Meat means high protein content, and FPIES is a violent allergy to food protein. Instead we have fed Elianna fruits which are known to be low in protein (a.k.a. lower in nutritional value) and higher in sugar content. I now speculate that she has 'passed' these fruits because they have fed the bacteria imbalance in her intestines and continued her gut dysbiosis. I will continue to add some formula in to her broth until her stools look more regular, and I can get her onto a regimen of probiotics. These are coming in the mail.

Only 10 days ago I was on my knees begging for direction as I watched Ellie's eyes grow darker and foggier, and her little body show signs of dehydration and lack of nutrition. Her extended belly had become harder and rounder than ever, and her energy was low. She whimpered a lot, and spoke very little of her typical jibberish. Today I was in awe as I ran my hand over her belly to find that her eczema is disappearing where her skin has always been horribly dry and scaley. Her cognitive ability has increased, as she is now talking clear words, engaging in conversation and following directions in ways she has not done in the past. She is initiating play, and expressing normal emotions such as frustration, and preference. She is giving kisses and asking for food. All of this within 8 days. And no one will ever be able to tell me that food allergy and intestinal health does not influence the brain and development, because I have seen it with my own eyes, in my own child.

7 comments:

  1. I love, love , love this!!!! I'm so amazed and in awe of your perseverance and willingness to go out on a limb to heal your baby girl. How unbelievable that you are literally getting to watch her body heal before your very eyes!!! So excited for you.

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  2. Oh no, I'm horrified to hear that you've been told to stay away from meat! The bone broths sound phenomenal and I wish I had encountered this idea sooner. Salmon was a huge win for our little one because of the FAT :) and protein and calcium. And bison.... the addition of that alone took away one night-waking-to-feed. Good luck! Keep going! Phenomenal work!

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  3. This is amazing! Thank you for sharing this for everyone. I know you have wheels spinning for plenty of moms out there. I know you have mine spinning. I had never even heard of GAP before. I hope Ellie continues to get better! Great news! Heather

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  4. Love this! Nichole your hard work is paying off!

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  5. Heather! Thank you....I must clarify in another post. They told me to start with NON-protein and LOW-protein foods like fruit. NOt until recently when we realized that things were getting critical did they push for lamb. But not HOW to prepare it or feed it to her.

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  6. This is amazing Nichole!!! PRAISE GOD!!

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  7. Thank you for sharing this good news. We continue to pray. The little girls are praying for her complete healing. I KNOW God hears the prayers of the children! You are doing an amazing job.

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